My son, Nathan, is a scimitar syndrome survivor. Little Aubrey Rose also had scimitar syndrome, but did not survive. Her family created a charitable foundation in her name. I received this newsletter from the Aubrey Rose Foundation:
Our Mission is to help families caring for children with life-threatening illnesses with our focus being on the family [...]
Continue reading about The Aubrey Rose Foundation Celebrates 10 Years
Take a look at the wonderful ways the Aubrey Rose Foundation is helping families with financial needs due to the medical needs of their children:
ACCOMPLISHMENTS
We are very proud of our accomplishments in our ten years but we know we have our work cut out for us to continue on with helping families. Our job will [...]
Continue reading about Accomplishments of the Aubrey Rose Foundation
A tribute to the fine health care professionals who work to repair little hearts. Written by Sylvie Stephens.
I first came to the PICU after Sydney’s open heart surgery. Sydney was in bed #13. Jane was her nurse. Ingrid was the CRN. There was no need to adjust to the new surroundings. I was always focused [...]
I received the following message today from Kassandra’s mother:
“We got a bit of bad news on Monday…Kassandra is going to have to go thru surgery again. It is so stressful and frustrating. She was doing so well, or so I had thought…she has been experiencing all of the signs that she should have been experiencing in the first place. [...]
