Karen on March 23rd, 2011

I received a lovely letter recently from Taylor Lewis, mom of an adorable toddler named Riley Rae.  She stumbled across Nathan’s Prayer and wrote that her daughter was also born with congenital heart defects.  Riley Rae has double inlet, single left ventricle with transposition of great vessels, and pulmonary valve artesia.  She had heart surgery [...]

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Karen on March 17th, 2011

“Your son is in heart failure.” As I read those words in the early pages of Bill Coon’s book, Swim: A Memoir of Survival, I knew I would have to read the rest of this story even if it took me on an uncomfortable journey.  I’m the mother of a child with a congenital heart [...]

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Karen on March 15th, 2011

In late August of 2010, I wrote a post about one-year-old Colin, son of Abby Scklarek.  Colin was born with scimitar syndrome and had heart surgery in October.  The surgery appeared to be successful, but Mom Abby reports that the scimitar vein that was re-routed is narrowing.  A heart catheterization is scheduled in April to [...]

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