Today’s Good Morning America covered an interesting story of a man with situs inversus (organs on the opposite side). Jack Eigel lived with this condition just fine until he required a heart transplant in his early 50s. The space for his new heart would be shaped differently, complicating an already difficult surgical procedure.
This interests me [...]
Back in April, I attached this photo to a post I wrote about Dr. Edward Bove (the surgeon who performed our Nathan’s surgery in 2006). I learned from Phil Eppard, that the little fella’ pictured with Dr. Bove is Phil’s son, Aidan. The photo was taken in 2005 after Aidan’s first heart surgery and has [...]
If your child is old enough to have good communication skills, you may wonder how much information you should share with him about his congenital heart defect. As Bryan and I discovered in our journey with our son, Nathan, this can be a delicate dance. Not enough information can catch a child off-guard when tests [...]
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Nathan has the most unique anatomy in the family; but his sister, Michelle, has the most unique eyes in the family (Heterochromia).
To find out what cutting edge technologies are on the horizon to help children with congenital heart defects, I decided to talk to a researcher in the field of stem cell sciences. Usually, these guys are too busy for interviews, but what do ya’ know? I happen to have one in my living room…my son, [...]
Continue reading about Stem Cell Research: Possibilities for Congenital Heart Defects
