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Karen Blakeney
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I just lost my little boy at two months to scimitar syndrome and other complications. Just wanted you to know that I appreciate you drawing attention to such a rare disease. His twin brother is doing outstanding though!! The Lord chooses the good ones!
This is truly amazing! You and your family are being such a blessing to others. May God continue to bless your family!
And we know that all things work together for good to them that love God, to them who are the called according to his purpose! Romans 8:28
I haven't read much on this site yet, but tend too. I just wanted to introduce myself, I am a 40yr old "NaNa" that had a daughter with Symitar Syndrome and it took her life after a 7 1/2 year fight. I know the journey thru this site will be bitter sweet for me, but even after 10yrs, I still hurt/miss her, maybe this will bring alittle bit more healing! God Bless you and your family!!!
I love this page! My daughter has CHD and was in the Children's Hospital- Minneapolis for about 2 months after birth.
Thank you for stopping in, God bless you and your family!
I'm so happy to be a join your website. I've needed to reach out to a friend and perhaps Sylvie can help me. I'll ask her.
Kindest regards,
Barbara
Nathan,
Sydney will watch over you for your whole life.
Love,
Sylvie Stephens
That was a beautiful prayer. I was googling Scinitar when this site was one that came up. I had surgery for this when I was 4 years old at Children's Memorial in Chicago and it was a sucess because I am now 38 years old and have led a perfectly normal life as a wife and mother. I thought I would share this with you to give you hope for your child to grow up and become everything that he ever dreamed of becoming. God bless you and live everyday to its fullest.
I was googling Dr. Bove and came across your site. Dr. Bove is about to perform the 2nd surgery on our son Aidan on Sept. 14th. The picture you have posted is with our son Aidan after his first surery with Dr. Bove back in 2005. They were running the "Michigan Difference" campaign then and asked if it would be OK to photograph Aidan with Dr. Bove. He is an amazing man....thank god for giving the gift to him. He changes lives on a weekly, if not daily, basis.