Amazing Grace!
If you are not familiar with the story of little Sydney, please read these previous posts: Pray for Sydney, Update, “God will give me strength…”, Nurse Angels, “I can’t kiss her enough”, “He will help me heal…”, Three Minutes of Wonderful, Happy six months…, Sydney is in a better place. As you [...]
Continue reading about A Message From Sydney’s Mom (Special Thanks to Tebow)
If you have a child with a congenital heart defect or any other birth defect or illness, you have silently asked,”Why did this happen to my child?”
Sometimes we ask the question because we wonder if we were exposed to something toxic: Fumes from fresh paint? Bug spray? Medicine taken before we knew we were pregnant? [...]
As Nathan regained consciousness after heart surgery, I wanted to snap a photo to record the moment. Partially out of habit, and partially out of pure joy at seeing his eyes flicker, I blurted out, “Smile!” Instantly, I felt ashamed of myself given the ordeal he had just come through. But ever-obedient, his lips slowly [...]
Continue reading about Remembering C.S. Mott; Nathan Wakes Up After Heart Surgery
If your child is old enough to have good communication skills, you may wonder how much information you should share with him about his congenital heart defect. As Bryan and I discovered in our journey with our son, Nathan, this can be a delicate dance. Not enough information can catch a child off-guard when tests [...]
Continue reading about “What Do I Tell My Child About His Congenital Heart Defect?”
“This is great, Mom,” Nathan said as I pulled in at Lynn Meadows Discovery Center. “It reminds me of my childhood.” Nathan is only eight-years old, but seems to believe he is no longer in his childhood. In a way, I understand his perspective. After all, he was a regular at “Meadows” (Nathan-speak for LMDC) [...]
Continue reading about Nathan Visits the Lynn Meadows Discovery Center
