“Your son is in heart failure.” As I read those words in the early pages of Bill Coon’s book, Swim: A Memoir of Survival, I knew I would have to read the rest of this story even if it took me on an uncomfortable journey. I’m the mother of a child with a congenital heart [...]
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My friend, Jan Spiers, is passing along a prayer request via her sister, Karen, in Kentucky. Karen’s friend, Christy, has quintuplets–born this year–and one of them has a congenital heart defect. There is concern that baby Easton’s condition may be serious enough to warrant a heart transplant. The family is aware that the heart transplant [...]
Annual checkups are an important part of maintaining Nathan’s heart and back health. Recently, Bryan, daughter Michelle, and I traveled with Nathan to Children’s Hospital in New Orleans to see how his heart looks four years after surgery to correct Partial Anomalous Pulmonary Venous Return (PAPVR), a problem associated with his scimitar syndrome.
The echocardiogram seems [...]
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Amazing Grace!
If you are not familiar with the story of little Sydney, please read these previous posts: Pray for Sydney, Update, “God will give me strength…”, Nurse Angels, “I can’t kiss her enough”, “He will help me heal…”, Three Minutes of Wonderful, Happy six months…, Sydney is in a better place. As you [...]
Continue reading about A Message From Sydney’s Mom (Special Thanks to Tebow)
If you have a child with a congenital heart defect or any other birth defect or illness, you have silently asked,”Why did this happen to my child?”
Sometimes we ask the question because we wonder if we were exposed to something toxic: Fumes from fresh paint? Bug spray? Medicine taken before we knew we were pregnant? [...]
