Congenital Heart Defect
In August of 2009, I connected with a lovely mother, Sylvie Stephens, through my Nathan’s Prayer website. Her baby daughter, Sydney, was a patient at Children’s Hospital in Minnesota. Sylvie and I exchanged long emails over a period of time as we hoped and prayed for Sydney to be healed as she battled a congenital [...]
“Your son is in heart failure.” As I read those words in the early pages of Bill Coon’s book, Swim: A Memoir of Survival, I knew I would have to read the rest of this story even if it took me on an uncomfortable journey. I’m the mother of a child with a congenital heart [...]
Continue reading about SWIM: A Memoir of Survival by Bill Coon
My friend, Jan Spiers, is passing along a prayer request via her sister, Karen, in Kentucky. Karen’s friend, Christy, has quintuplets–born this year–and one of them has a congenital heart defect. There is concern that baby Easton’s condition may be serious enough to warrant a heart transplant. The family is aware that the heart transplant [...]
Annual checkups are an important part of maintaining Nathan’s heart and back health. Recently, Bryan, daughter Michelle, and I traveled with Nathan to Children’s Hospital in New Orleans to see how his heart looks four years after surgery to correct Partial Anomalous Pulmonary Venous Return (PAPVR), a problem associated with his scimitar syndrome. The echocardiogram [...]
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Amazing Grace! If you are not familiar with the story of little Sydney, please read these previous posts: Pray for Sydney, Update, “God will give me strength…”, Nurse Angels, “I can’t kiss her enough”, “He will help me heal…”, Three Minutes of Wonderful, Happy six months…, Sydney is in a better place. As you may [...]
Continue reading about A Message From Sydney’s Mom (Special Thanks to Tebow)
