This week, Veronica Janus releases her book, Abundantly More: A Mother Clings to God as Her Infant Clings to Life. “Abundantly More shares my journey of hope and healing,” writes Janus, “and it also offers practical knowledge on how to navigate life in a pediatric ICU.”
I’m not aware of many memoirs written about a family’s [...]
“Your son is in heart failure.” As I read those words in the early pages of Bill Coon’s book, Swim: A Memoir of Survival, I knew I would have to read the rest of this story even if it took me on an uncomfortable journey. I’m the mother of a child with a congenital heart [...]
Continue reading about SWIM: A Memoir of Survival by Bill Coon
by Sylvie Stephens Tieszen
While enjoying a perfect fall day downtown, we went inside a Macy’s Holiday Store filled top to bottom with Christmas decorations. Almost trance-like, forgetting it’s not yet Halloween, I went in search of a pink Sydney Ornament. I lost my baby girl at 6 months and 1 day to Scimitar [...]
Lisa writes that her 5-year-old son, Gage, recently had a heart catheterization after doctors detected that the right side of his heart was enlarged. Subsequently, he was diagnosed with Partial Anomalous Pulmonary Venous Return and will require heart surgery next month. She reports that the doctor said the procedure must be done soon or his [...]
Every now and then I run across a remarkable congenital heart defects blog. Check out Living for Eden. This blog tells the story of Paul Cardall, an award-winning pianist, who was born with severe congenital heart defects (Large ASD, L-Tranposed AO, Single Ventricle, Single A-V Valve, Pulmonary Atresia).
Despite a variety of surgeries during his [...]
