Hypoplastic Left Heart Syndrome
“Your son is in heart failure.” As I read those words in the early pages of Bill Coon’s book, Swim: A Memoir of Survival, I knew I would have to read the rest of this story even if it took me on an uncomfortable journey. I’m the mother of a child with a congenital heart [...]
Continue reading about SWIM: A Memoir of Survival by Bill Coon
I am aware of two children at C.S. Mott Children’s Hospital right now that need prayer (same hospital where Nathan’s heart surgery took place). Colleen is awaiting test results on her son, Tommy, who has recently received a heart transplant. Doctors are testing for possible cellular rejection and should know if this is the problem [...]
When faced with a complicated congenital heart defect, confidence in the skill and expertise of your child’s surgeon is of paramount importance. When our son, Nathan, was diagnosed with Scimitar Syndrome, a rare condition characterized by dextrocardia, pulmonary hypoplasia, and Partial Anomalous Pulmonary Venous Return, we soon learned that our local surgeons had no personal [...]
