I got an email from “Auntie Dalyn” requesting prayer:
Kassandra is my four-year-old niece who will be having surgery for PAPVR in the coming days. Our family is trying to be as emotionally strong as possible although the daily pep talks to ourselves is becoming more and more difficult as the day of surgery nears. Please [...]
As Nathan regained consciousness after heart surgery, I wanted to snap a photo to record the moment. Partially out of habit, and partially out of pure joy at seeing his eyes flicker, I blurted out, “Smile!” Instantly, I felt ashamed of myself given the ordeal he had just come through. But ever-obedient, his lips slowly [...]
Continue reading about Remembering C.S. Mott; Nathan Wakes Up After Heart Surgery
If your child is old enough to have good communication skills, you may wonder how much information you should share with him about his congenital heart defect. As Bryan and I discovered in our journey with our son, Nathan, this can be a delicate dance. Not enough information can catch a child off-guard when tests [...]
Continue reading about “What Do I Tell My Child About His Congenital Heart Defect?”
“This is great, Mom,” Nathan said as I pulled in at Lynn Meadows Discovery Center. “It reminds me of my childhood.” Nathan is only eight-years old, but seems to believe he is no longer in his childhood. In a way, I understand his perspective. After all, he was a regular at “Meadows” (Nathan-speak for LMDC) [...]
Continue reading about Nathan Visits the Lynn Meadows Discovery Center
