PAPVR
This little news segment ran on our local station, WLOX, back in 2007. Nathan was five years old and was just a few months recovered from heart surgery to correct PAPVR (Partial Anomalous Pulmonary Venous Return), a component of scimitar syndrome. His sister, Michelle, presented him as her everyday hero at a school luncheon. Nathan [...]
I got an email from “Auntie Dalyn” requesting prayer: Kassandra is my four-year-old niece who will be having surgery for PAPVR in the coming days. Our family is trying to be as emotionally strong as possible although the daily pep talks to ourselves is becoming more and more difficult as the day of surgery nears. [...]
As Nathan regained consciousness after heart surgery, I wanted to snap a photo to record the moment. Partially out of habit, and partially out of pure joy at seeing his eyes flicker, I blurted out, “Smile!” Instantly, I felt ashamed of myself given the ordeal he had just come through. But ever-obedient, his lips slowly [...]
Continue reading about Remembering C.S. Mott; Nathan Wakes Up After Heart Surgery
If your child is old enough to have good communication skills, you may wonder how much information you should share with him about his congenital heart defect. As Bryan and I discovered in our journey with our son, Nathan, this can be a delicate dance. Not enough information can catch a child off-guard when tests [...]
Continue reading about “What Do I Tell My Child About His Congenital Heart Defect?”
