Karen on December 24th, 2009

This is  the most beautiful Christmas card I have ever received.
I came to know Sylvie Stephens through the Nathan’s Prayer website.  Her friend, Gail Devine, was looking for information about scimitar syndrome because Sylvie’s baby girl, Sydney, was struggling with this rare heart condition.  My Nathan had surgery three years ago to correct Partial Anomalous [...]

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Karen on October 23rd, 2009

Last week, Bryan and I took Nathan to Children’s Hospital in New Orleans for his annual checkup.  His heart surgery to correct Partial Anomalous Pulmonary Venous Return, a problem connected to his Scimitar Syndrome, occurred about three years ago.  The first year after surgery, appointments were a few months apart, but he has done well, [...]

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Karen on October 19th, 2009

I got an email from “Auntie Dalyn” requesting prayer:
Kassandra is my four-year-old niece who will be having surgery for PAPVR in the coming days.  Our family is trying to be as emotionally strong as possible although the daily pep talks to ourselves is becoming more and more difficult as the day of surgery nears.  Please [...]

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Karen on September 30th, 2009

Traci Doland reports that her son, Broady, had a CT scan today in preparation for heart surgery.  Broady has scimitar syndrome, which involves several problems including partial anomalous pulmonary venous return, hypoplasia of the right lung and right lower lobe sequestration.
“We meet with the surgeons on October 26th,” says Traci.  “They have us for November [...]

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Karen on September 21st, 2009

Traci Doland keeps me updated on her son, Broady.  She recently set up a CaringBridge page to keep friends and family informed about treatments and appointments.  She writes:

Broady was diagonsed with Scimitar Syndrome when he was a week old in the NICU @ Maggie Hospital. He has hypoplasia of the right lung, right lower [...]

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