This little news segment ran on our local station, WLOX, back in 2007. Nathan was five years old and was just a few months recovered from heart surgery to correct PAPVR (Partial Anomalous Pulmonary Venous Return), a component of scimitar syndrome. His sister, Michelle, presented him as her everyday hero at a school presentation. Nathan [...]
My son, Nathan, is a scimitar syndrome survivor. Little Aubrey Rose also had scimitar syndrome, but did not survive. Her family created a charitable foundation in her name. I received this newsletter from the Aubrey Rose Foundation:
Our Mission is to help families caring for children with life-threatening illnesses with our focus being on the family [...]
Continue reading about The Aubrey Rose Foundation Celebrates 10 Years
This is the most beautiful Christmas card I have ever received.
I came to know Sylvie Stephens through the Nathan’s Prayer website. Her friend, Gail Devine, was looking for information about scimitar syndrome because Sylvie’s baby girl, Sydney, was struggling with this rare heart condition. My Nathan had surgery three years ago to correct Partial Anomalous [...]
Continue reading about The Most Beautiful Christmas Card Ever
A website called Tebow’s Eye Black noticed the story I posted recently about Sylvie Stephens who lost her sweet baby, Sydney, this past September after a battle with scimitar syndrome. There is a lovely prayer under the category of “Sunday Huddle” for Sylvie:
God bless and keep Sylvie, make your face to shine upon her, and [...]
Amazing Grace!
If you are not familiar with the story of little Sydney, please read these previous posts: Pray for Sydney, Update, “God will give me strength…”, Nurse Angels, “I can’t kiss her enough”, “He will help me heal…”, Three Minutes of Wonderful, Happy six months…, Sydney is in a better place. As you [...]
Continue reading about A Message From Sydney’s Mom (Special Thanks to Tebow)
