Scimitar Syndrome

Sylvie on October 8th, 2010

by Sylvie Stephens Tieszen While enjoying a perfect fall day downtown, we went inside a Macy’s Holiday Store filled top to bottom with Christmas decorations. Almost trance-like, forgetting it’s not yet Halloween, I went in search of a pink Sydney Ornament. I lost my baby girl at 6 months and 1 day to Scimitar Syndrome [...]

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Karen on August 31st, 2010

About mid-June, I received an email from Abby Scklarek that began:  “I just read the article in Parents Magazine and I knew I had to get in touch with you…”  It turns out Abby has a one-year-old son, Colin, who also has scimitar syndrome.  She shared with me that he would need heart surgery sometime [...]

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Karen on July 10th, 2010

Janielle writes: I am asking for prayers for my daughter Chloe. We found out last month that she has Partial Anomalous Pulmonary Venous Return to the Coronary Sinus. She has an MRI coming up and surgery will take place in the next few months. I am scared beyond belief! She was always a healthy child [...]

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Karen on March 12th, 2010

This little news segment ran on our local station, WLOX, back in 2007.  Nathan was five years old and was just a few months recovered from heart surgery to correct PAPVR (Partial Anomalous Pulmonary Venous Return), a component of scimitar syndrome.  His sister, Michelle, presented him as her everyday hero at a school luncheon.  Nathan [...]

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Karen on February 23rd, 2010

My son, Nathan, is a scimitar syndrome survivor.  Little Aubrey Rose also had scimitar syndrome, but did not survive.  Her family created a charitable foundation in her name.  I received this newsletter from the Aubrey Rose Foundation: Our Mission is to help families caring for children with life-threatening illnesses with our focus being on the [...]

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