Nathan's Prayer » Shari Maurer http://nathansprayer.com Hope for Children with Congenital Heart Defects Mon, 23 Apr 2012 23:13:46 +0000 en hourly 1 http://wordpress.org/?v=3.3.1 The Parent’s Guide to Children’s Congenital Heart Defects by Gerri Freid Kramer and Shari Maurer http://nathansprayer.com/2009/03/19/the-parents-guide-to-childrens-congenital-heart-defects/ http://nathansprayer.com/2009/03/19/the-parents-guide-to-childrens-congenital-heart-defects/#comments Fri, 20 Mar 2009 02:13:57 +0000 Karen http://nathansprayer.com/?p=168 by Gerri Freid Kramer and Shari Maurer You'll find the question and answer format of this book user friendly. The authors, Gerri Freid Kramer and Shari Maurer, are both mothers of children with heart defects, so an understanding of the kinds of information and support parents are seeking comes naturally...]]> The Parent's Guide to Children's Congenital Heart DefectsYou’ll find the question and answer format of this book user friendly.  The authors, Gerri Freid Kramer and Shari Maurer, are both mothers of children with congenital heart defects, so an understanding of the kinds of information and support parents are seeking comes naturally.  Besides the expected chapters on diagnosis, types of defects, and surgery, there are wonderful sections on “Coping” and “Dealing with Difficult Times.”  Personal stories from parents of children with a variety of heart defects are interspersed throughout the book, making it engaging and compassionate as well as informative.

There’s a glossary in the back along with a list of resources and pertinent CHD books.  The Foreword by Sylvester Stallone and his wife, Jennifer, is also a nice touch.

If I have any reservations about the book, it is my discomfort with the question, “When do doctors recommend that you terminate a pregnancy?”  My own child would have been a candidate for termination by some standards, a supposition that ignores the intrinsic value of a life regardless of disabilities.

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