Janielle writes:
I am asking for prayers for my daughter Chloe. We found out last month that she has Partial Anomalous Pulmonary Venous Return to the Coronary Sinus. She has an MRI coming up and surgery will take place in the next few months. I am scared beyond belief! She was always a healthy child and [...]
Back in April, I attached this photo to a post I wrote about Dr. Edward Bove (the surgeon who performed our Nathan’s surgery in 2006). I learned from Phil Eppard, that the little fella’ pictured with Dr. Bove is Phil’s son, Aidan. The photo was taken in 2005 after Aidan’s first heart surgery and has [...]
This July will make three years since Nathan’s heart surgery at C.S. Mott Children’s Hospital at the University of Michigan Medical Center. He colored a cheerful picture for me recently that seems to convey instant happiness after his heart was repaired. That’s not exactly my recollection, so I asked him what he remembers about those [...]
Continue reading about What will a 5-year-old remember about heart surgery?
This is one of the best illustrations I have found for explaining PAPVR.
Partial Anomalous Pulmonary Venous Return (PAPVR) is a rare congenital heart defect in which blood flow from one or more of the pulmonary veins return to the right atrium instead of to the left atrium. This is a problem because the right atrium [...]
Continue reading about Partial Anomalous Pulmonary Venous Return
When faced with a complicated congenital heart defect, confidence in the skill and expertise of your child’s surgeon is of paramount importance. When our son, Nathan, was diagnosed with Scimitar Syndrome, a rare condition characterized by dextrocardia, pulmonary hypoplasia, and Partial Anomalous Pulmonary Venous Return, we soon learned that our local surgeons had no personal [...]
